Over the past several years I’d been experiencing some unexplainable indications that something was wrong with my body. Loss of balance was the major problem, but other things as well, such as shuffling my feet, mumbling my speech, writing very tiny, and shaking in my right arm.
About twelve months ago, I was diagnosed with Parkinson’s Disease (PD). My balance hasn’t worsened, but my tremors have. So I joined a Facebook support group to learn more. I was justifiably concerned about my PD, because no disease is good, but I learned it isn’t necessarily a death-sentence.
In the US, there are, perhaps, one-million people with Parkinson’s, so that means less than one percent of the population is affected by the disorder. I guess I’m just one of the lucky ones.
One of the more common problems is tremors in the arms, which frequently causes eating difficulties. That’s one of my challenges, so I set out to see if there was any potential solutions.
I Googled “Eating utensils for Parkinson’s” and found a lot of options like weighted spoons, swivel spoons, but I was really intrigued by a utensil produced by a company called Liftware. Technically, it’s called an “active cancelation of tremor (ACT) device technology,” or as I call it, “a fancy spoon.”
It was expensive, but the staff at Reviewed.com offered to buy it for me so see how it works. I excitedly accepted, but it occurred to me that a lot of people wouldn’t be able to afford it either so I thought I’d look for other options. Because I live in Massachusetts, someone in my support group suggested I contact Bill Patjane, Executive Director of the Massachusetts Chapter of the American Parkinson’s Disease Association (APDA).
I asked him if he knew of any studies that covered varieties of eating utensils for PD sufferers. He graciously connected me with Dr. Rebecca Gilbert, VP, and Chief Scientific Officer of the APDA.
Dr. Gilbert referred me to one of her blog posts where she interviewed Lisa Carson, OTD, OTR/L.
“My recommendation as to which [utensil] is best really depends on the person,” she said.
I immediately realized my opinion alone wouldn’t suffice for this article, so I needed to dig deeper. Dr. Gilbert already knew I was looking for studies, so she also sent me a copy of one published in The American Journal of Occupational Therapy (Adapted Feeding Utensils for People With Parkinson’s-Related or Essential Tremor – Sabari 2019). It compared a standard spoon to four others, allegedly adaptive for those with PD. Coincidently, it included the one made by Liftware, which is owned by Google.
It made no practical sense to do a detailed write-up on the entire study (And, yes, it was quite boring), so I thought I’d recap each of the spoons. The study included 22 participants.
Weighted spoon
One participant said he preferred it over all the others. Another said it created a better eating experience. One said he favored it because it felt more natural than the rest. There were minuses as well where one participant stated it increased her rigidity, and another said it caused shoulder pain.
Weighted spoon with a built up handle
Several said it was bad as it would cause pain in the arms and shoulders of the elderly suffering from weak muscles. Another said it was a total disaster. Quite simply, one said that it plainly didn’t work.
Swivel spoon
The swivel spoon, for the most part, earned negative comments. Regardless, it was noted that for some, there was a smaller degree of spilling cereal.
the easiest to use. Some also commented that it was the best of them all, and was the most functional. A few commented on its comfortable feel. On the minus side, one commented that the bulky handle felt clumsy in his hands.
Also, the aesthetics was viewed as bad. That’s important because many with PD are concerned about the perceptions others have of them in public. They yearn to blend in with others, publically, and using a clumsy, bulky eating utensil would make them stand out. That’s something people such as me do not want.
It’s also interesting to note that in qualifying people for the study, Liftware required that potential participants pass a screening test via a sheet printed from their website (http://www.liftware.com/test) which measured the severity of an applicant’s tremor. That’s unfortunate, because its biasness excluded people with severe tremors. The result was only those with mild shaking were allowed into the study.
Looking ahead, the authors suggested that people in future studies (and generally people like me at home – my note) practice beforehand. It’s no coincidence that Liftware’s supportive literature that’s included with each purchase, emphasizes consumers try their device for a week before deciding if the Steady Spoon is right for them.
One major drawback is that it is fairly expensive at $198. That will buy a starter kit which includes only one detachable spoon. Forks and knives are available at extra cost. A few people in the study said they would consider buying it if it were cheaper, and another said it wasn’t worth the expense.
So, what do I think? One look at my test video – (https://www.youtube.com/watch?v=pOpHO3reOno) is proof that clearly shows how greatly superior the Liftware spoon is when compared to a standard one. However, for me, the expense is the biggest factor. I only plan to use it at home, where spilling some cereal doesn’t embarrass me, and yields only some sympathy from my wife.
My recommendations boils down to price. If you can afford it, why not? The Liftware Steady is a great investment, but that’s exactly what it is ... a costly, fancy spoon.
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